Help Establish Standard Data Collection Protocols for COVID-19 Research

August 27, 2020

Contribute to the PhenX COVID-19 Crowdsourcing Effort by participating in a short, anonymous survey. This activity should take you 5 to 10 minutes to complete. Your response will help PhenX create collections of recommended measurement protocols for COVID-19 research. With thanks to all who participated topic grouping in Phase 2, here is a preview of the results:Top Group Categories For Researchers:1. Race, Ethnicity and Demographics2. Socioeconomic Impacts3. Personal Risk Factors4. Mental Health5. COVID-19 Information and Sources6. Treatment, Outcomes and Medical historyTop Group Categories for Non-researchers:1. Treatment, Outcomes and Diagnosis2. Race, Demographics and Socioeconomic Impacts3. Mental and Physical Health4. Personal Choice and InformationCollaborators in the PhenX COVID-19 project include the U.S. National Institutes of Health (NIH) Office of Behavioral and Social Sciences Research (OBSSR), the National Institute of Environmental Health Sciences (NIEHS), the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), the National Institute of Allergy and Infectious Diseases (NIAID), the National Library of Medicine (NLM), and the National Human Genome Research Institute (NHGRI). Disaster Research Response (DR2) serves as a repository for disaster-related data collection tools, including COVID-19 surveys. The PhenX Toolkit is a catalog of recommended measurement protocols suitable for use in a variety of research study designs involving human participants. Funding:PhenX is funded by the National Institutes of Health (NIH) Genomic Resource Grant (U41HG007050) from the National Human Genome Research Institute (NHGRI) with current or prior funding support from the National Institute on Drug Abuse (NIDA), the Office of Behavioral and Social Sciences Research (OBSSR), the National Institute of Mental Health (NIMH), the National Heart, Lung, and Blood Institute (NHLBI), the National Institute on Minority Health and Health Disparities (NIMHD), and the Tobacco Regulatory Science Program (TRSP).